BCM is a very rare disease and many men have spent a large proportion of their lives living with no diagnosis or alone with no contact with others in the same situation.
Thanks to the advent of genetic testing, social media/the internet and with the support of BCMFF, we are now able to connect BCM men with each other and their families. Being inspired by our successes and learning from our collective journeys.
Trudi Dawson, the mother of a BCM boy in the UK, presents our ’60 seconds with….’ column with the aim of connecting families and their wealth of experiences living with BCM. Whilst we await a cure, let’s work to support and guide each other and our BCM family.
Mike Fry
I am a stay at home dad to 5 wonderful children. Before that I was an attorney for the State of California in the …
Bradley Harrison
I love to travel, I have been to 17 countries, I like to snowboard in the winter, watch movies and play …
Nacer Boussahoul
I love hiking, being lost in wild spaces. I really enjoy martial arts practice and recently discovered a passion…
Robert Finch
I am retired from paid employment but I gained a BSc. in Mechanical Engineering (without seeing the…
Tom Rogers
I currently work in the Gym Group, Crawley as the Assistant General Manager. I aspire to be a…
Paul Rowland
For more than thirty years, I was the psychologist for North Carolina’s Division of Services for the…
Kyle Bieze
I was president of my highschool’s Latin Club, was elected into my university’s Student Government..
Benedikt Roemer
I am currently a research associate at a university in Germany and pursuing a PhD project in the…
Hawk Masters
I have worked so many different things in my life. Professional education as a baker..
Jameson Cavitt
When I am grown up I would like to study animals and help them to survive if they are hurt…
David T. Dilling
I am retired as the owner of an HVAC business which I sold in 2015. I like to read, go to movies and work in…
Oscar Wohlfahrt
I am currently studying for a bachelor’s degree in General Engineering. I am quite…
Dean Monthei
I am retired now but worked as a materials engineer specializing in electronics packaging…
Oscar Dawson
My great-great Grandfather was described as ‘not being able to see colour and not being…
George Donaldson
I grew up at a time when there was not much information about BCM, so I would suggest educating…
Virgil Wade
I was a Machinist. I would have liked to have been a Cowboy and Rancher all my life…
Jason Faulkner
I don’t like doing things that remind me that I can’t see as well as others. Not much for…
Robert Hicks
After a lifetime with BCM, here are a number of tips from various times of life: As a young person…
